I know i did a tiny pointless blog this morning but ive actually got a better reason to blog this evening!
yes yes yes i got that call iv been waiting for since i first found out i was getting it....nope not a transplant call something better.....KALYDECO!!!
i have to go to clinic this friday at 1.30 as its all been secured for me, ive got to go sign the paperwork and pick up my new amazing drug "blue-lighting" kalydeco!!
im beyond excited and after getting the call today i couldnt stop smiling and shaking! it was like all my birthdays and christmases had come at once!
so im making a plan now, seen as though i started feeling a bit rubbish last few days im going to start a little diary of how my chest really is now and exactly how im feeling to see the changes and differences, sounds pretty gay but some people might be interested and im pretty differcult to tell how i really am, if you ask how i am il tell you how im feeling that precise second, so weather or not iv been feeling crap all day if im feeling good for that split second then il make out iv been feeling great the whole day, and obviously thats not very useful if im trying to see if there is differences on this drug, so yeah thats the plan!!
hope i stick to it and i dont just bore the hell out of people reading hahaha
also i might let people into alot more than i usually do, il try not to be too discusting but i know people will want to know the ins and outs of everything ;)
anyways not really much more i can add health wise until friday...
gonna have to give my consulant a massive thanks for getting this before my birthday like i asked ;) whoop
watch this space powwwwwwwwwwwwwwwww!!!!!
oh yeah 6 month harefield appointment on wednesday too...
just under 4 weeks until we get puppy Mason home heres a little piccy of my baby boy!
love love
4,472 hours on transplant list
6 months 3 days
xx
yes yes yes i got that call iv been waiting for since i first found out i was getting it....nope not a transplant call something better.....KALYDECO!!!
i have to go to clinic this friday at 1.30 as its all been secured for me, ive got to go sign the paperwork and pick up my new amazing drug "blue-lighting" kalydeco!!
im beyond excited and after getting the call today i couldnt stop smiling and shaking! it was like all my birthdays and christmases had come at once!
so im making a plan now, seen as though i started feeling a bit rubbish last few days im going to start a little diary of how my chest really is now and exactly how im feeling to see the changes and differences, sounds pretty gay but some people might be interested and im pretty differcult to tell how i really am, if you ask how i am il tell you how im feeling that precise second, so weather or not iv been feeling crap all day if im feeling good for that split second then il make out iv been feeling great the whole day, and obviously thats not very useful if im trying to see if there is differences on this drug, so yeah thats the plan!!
hope i stick to it and i dont just bore the hell out of people reading hahaha
also i might let people into alot more than i usually do, il try not to be too discusting but i know people will want to know the ins and outs of everything ;)
anyways not really much more i can add health wise until friday...
gonna have to give my consulant a massive thanks for getting this before my birthday like i asked ;) whoop
watch this space powwwwwwwwwwwwwwwww!!!!!
oh yeah 6 month harefield appointment on wednesday too...
just under 4 weeks until we get puppy Mason home heres a little piccy of my baby boy!
love love
4,472 hours on transplant list
6 months 3 days
xx
No comments:
Post a Comment