Saturday, 31 October 2015

Harefield stay and lots of chit chat x

Firstly im loving my new blog layout! hope anyone reading this likes it to compared to my old layout. I chose the colour as its the birthstone colour for the month I got my transplant and I love the colour too anyways so all works well! 
massive thank you to Abigail Elkins Design !!

So since my last post things have been a bit rocky, nothing serious though and these lungs are still working a charm. 
but transplant isn't all straight forward! 

last week I had my bloods done at clinic on the Monday and the results showed up that my white blood count was 0 so I was told to sit away from everyone in clinic and once I saw my consultant simona I was told to come off my MMF, Valgancyclovir  and my Septrim drugs, to increase the levels. 

I was told to do my temperature twice a day and if it was to go up to 37.5 or above I would have to be admitted or if I felt unwell. 
With my levels that low I am more prone to infections! 
long story short it didn't go up, well it kinda did they went up to 0.2 on the wednesday. 
I woke up Thursday morning and didn't feel 100% I mean this is going to sound mega dramatic compared to the past not feeling well but so early after being transplanted you have to be extra careful and as my levels were so low I wasn't going to take any risks! 
I had a scratchy throat and lung function had almost dropped 10% so I emailed them straight away as I knew they wouldn't be in clinic yet and I had to go to Frimley for my hearing aids to be fitted at 9am so I went to the appointment and waited to hear from Harefield. 

Here's me looking extra special getting my hearing aids fitted! 

So that was all custie, still trying to get use to them, they're  so big and bulky in my ear and to be honest I don't feel that different with them, just louder! I'm still deaf as fuck!! 

So after I came out of the appointment I had a voicemail from the transplant nurse saying to call back and could I get to clinic asap. So off we went from One hospital to another! 

Got to Harefield had bloods, I'd already taken my tac so couldn't do those levels but had rest of bloods, then X-ray and lung function which was low. Fev1 1.26

In the afternoon waited to see what the crack was. 
Was called in to see Rohan, he's a really lovely dr! He said my xray looked good and it did...
compared to the one I had done not long after leaving Harefield, but my white blood count had gone back down to 0 again so stopping the drugs had not helped, he also said my crp had gone up.

 I asked him what to as he seemed concerned so imagined it being high...I burst out laughing when he told me it was 17!! I was like seriously that's classed as high! I was over 300 pre transplant but I suppose you have to be careful with all this now and they are suppose to be between 4-11 I think! 

Anyway I couldn't escape it this time I had to be admitted! Had a cannula put in at the clinic and was told to wait in treatment room until a room was ready for me on fir tree ward! 

Lee got himself comfy on the bed! But I was much happier in the special chair!! 

So finally got to the ward around hour later, walking up there with my nurse Fiona, she handed me a mask and said I had to wear it to protect myself lol I looked ridiculous!! 
Waiting for my room! 

Then I got to my room and it was either I wear a mask or anyone who comes into my room has to wear one and be gowned up! I was so shocked, I felt fine!
My nurse Kat! 

Me and auntie Pam! 
I got upgraded masks on the ward! Hahaa was told if I needed the loo I would have to use a commode as the toilets are shared on the ward... But there was no way I was going back to using a commode, so I whacked my mask on and sneaked off to the toilets each time, they secretly knew but couldn't stop me!! and I never asked to use a commode haha so the next day I was moved into a room by the desk which was en suite! 

The first night I was giving an injection called 
Granulocyte-colony stimulating factor (G-CSF or GCSF), also known as colony-stimulating factor 3 (CSF 3), is a glycoprotein that stimulates the bone marrow to produce granulocytes and stem cells and release them into the bloodstream.

That was a cheeky Internet explaination haha But yeah, well Fml I woke up around 5am the next morning in a weird pain, was like a spasm in my upper thigh!

 I'd never felt anything like it!! unlike a muscle pain where you can rub it to help, it wasn't helping because it wasn't the muscle it was the bone!
 I didn't know what it was and I started to think my body was really run down so was scared to mention to the dr as I wanted so badly to go to the James Bond premier that lee had got tickets for from work as he worked on the film sets and the premier was for the construction crew members in Leicester Square! 

So I didn't want any reason apart from the obviously low immune system to stop me from going, but I assumed my levels would have come up by Saturday morning so I could go! 

Well when the Drs came around Friday I decided to be sensible and tell them...turns out I was fine it was a normal side effect to the drug! Kinda relieved but wish they had told me first! 
My levels hadn't gone up on the Friday so it was looking more and more likely I wouldn't be going to the premier on the Saturday morning!!

Anyways I asked still and he said He can't physically stop me but i shouldn't be going as its a cinema and people could be full of colds and bugs! 

So later he comes in with the pain nurse and he kept quiet and after a few minutes of being lectured into how serious it is being this low and how she had cancer and she was that low for 87 days etc etc I knew where the convo was going! ESP as soon as she mentioned I shouldn't go to busy places like a CINEMA! 

Anyways as gutted I was too be missing the premier and seeing sexy bond, which I'd been so so so looking forward to going to as we didn't get tickets for last years one, I was being sensible, I've not come this far to risk my health over a film! 

Anyways I had to have another injection that Friday evening, and omg went to bed about 11pm and woke up screaming in pain and in floods of tears!! The pain was out of this world! I would rather have a transplant all over again than go through that! 

My upper bum lower back was in agony!! I ended having to have double tramadol, morphine as the paracetamol didn't even touch the pain. I think I finally got to sleep around 5am and woke up again at 8 in pain! Was just horrible. 

Found out my levels had gone up to 0.7 so was going in right direction and dr said they wouldn't do another injection and see what levels were like on Sunday..... And we did and they jumped up to 9.9!! Haha so good bye masks and hello freedom I was allowed to go home!! 

Whilst in hospital I done my bit to help Ashley's campaign and to get her those magical lungs!! 

 Before we packed up my room, we Went for a little harvester dinner first 

Was so happy to be going home that night as we had booked to go to the Isle of Wight to visit lees grandparents on the Monday evening and I had to pack and do washing! So going home Sunday worked a charm but had to be back Monday morning for clinic! 

Clinic all went well and my white blood count had then jumped up to 17 and was likely it would go up more!! So now they were too high! Haha so started me back on my MMF tablets but at the lower dose of 250mg twice a day instead of 500mg previously! 
Lung function was highest so far at 58% it's so nice to be at that but wish it would be a lot higher already! Determined to get it to at least 75-80% for Xmas!! More walks and get me into a gym!! 

So off we went to the Isle of Wight Monday evening! 

We got all the way to Southampton went for a cheeky MC Donald's as I'm addicted to their cheese bites at the moment for about 18.50!! Our ferry was booked for 19.15 and we so just enough time to eat and to get on. As we were eating I said to lee, you did put my drugs box in suitcase didn't you!!

Long story short he didn't , I didn't and of all the drugs to forget when we were going away off the mainland for a few days, I would forget my anti rejection tablets. I didn't even have enough in my handbag to cover me for a few days and no steroids! 
There was a lot of swearing in the car for the next 10 minutes haha then luckily my dad saved the day, lee rang the  ferry port and explained the situation and my dad went to my house picked up the box and drove half way to meet us! Life saver! And we got on the ferry at 9pm instead! :) 

We had a lovely few days over

 there seeing lees grandparents! Haven't seen them in such a long time and not been over to the Isle of Wight I think we worked out at least 3-4 years! 

Whilst over there we tried to go on the needles ride but it was lashing it down with rain and neither of us were feeling that tbh! 
So we went shopping in Newport instead!! And had a lovely dinner out with the family at a pub called the crab tree that evening In skanklin! 
The next day we visited monkey haven! It was a small, cute place but more for kids! Something different to do anyways!
Yeah I'm just too cool!! Lee is so lucky to have such a cool wife! Hahaha we went out for a nice Italian that night! I'm so deaf they spent the evening either laughing at me cause I couldn't hear or just repeating themselves a million times whilst I sat there smiling and nodding! Haha the restaurant was so loud it gave everyone a run for their money on the old hearing! 

I wake up in the morning to a picture message on my phone from lee, the little fucker!! 

Then the last day we chilled in for the day... 

weather wasn't great again and we was going home that night! We had a lovely roast cooked by grandad and sue in the evening and chilled a bit more then set off to the ferry home! 

I returned to Harefield the next day for blood tests to check all, and then after that I had to go to Frimley to pick up more gastrografin as I'm still getting problems with my tummy, also had an X-ray which I got a photo of! Basically I'm still full of shit! 
On way back from X-ray I bumped into my fav person on the ward!! Gotam! Prob spelt his name wrong! 
Missed him so much ESP when I was in Harefield, I had one of his pens he gave me just before I left and I used it all the time! I lost it after and was gutted!!, gave him a big hug and got him a can of redbull Incase I bumped into him!! He's my redbull buddy! 
That was last Friday. 

Sunday we celebrated my little sister Hannah's 19th birthday at breakfast at fego, I sound old but can't believe she is 19, I feel old, but look the youngest so all good ha
Her the night before ha 
Libby, me and Hannah the birthday girl!! 

Today was mine and lees 3rd wedding anniversary, we weren't  in a massive mood for celebrating, lees been in agony with a tooth abscess so no fancy meals or alcohol, he's on lots of painkillers and antibiotics and he has a puffy half face! Haha bless him! But I looked after him well and Cooked him his fav for dinner a nice roast! 

I was in Frimley park cf clinic again today to see Chris my consultant to try see if we can come up with a plan for this stupid tummy of mine! Typically it was better today but gone massive and bloated again this evening!

So I've got to continue with 100mls of gastrografin until Monday, go back for an abdominal X-ray to see if much has changed from last one! 
Change my domperidone from 20mg twice a day to 10g 3 times a day. 
 And see what happens. Klean prep was mentioned, but would have to be admitted for that and not feeling going in at the moment in there!! 
But he said he doesn't think I'm at this point yet! But that's the back up plan!
Got to drink at least 1.5litres of water a day and redbull and lucozade doesn't count towards it! Lol 
I asked him when will I get my flat tummy back!? Not so soon!! 

Unfortunately this might not be a quick fix and could take a long time to get sorted as I was in bed not moving for 8 weeks and had my transplant and was sedated twice and all that rubbish so naturally even for normal people things would Take a while to get back to "normal" and they aren't dealing with cf bowls, plus I have had to also stop the ivacaftor (kalydeco) now  because you cannot take them with anti rejection tablets, no matter how much I'm trying to persuade them to let me be a Guinea pig! I even have a pot left!! Haha so all in all my tummy isn't happy! 
But il get there whatever it takes!
I also saw my lovely Charissa dietian, we opted not to be calling her the poo lady! Poor woman, all I talk to her about now is  poo!! She wants me to do a little food, creon and poo diary until Monday to get an idea of what's going on with  creon too etc (creon is the tablets that digest the fat in my body as due to cf we cannot digest fat without the enzymes we take) 

As I'm not the smartest cookie I told her instead of saying how much I've had to eat etc I'm going to take pics of my food and send to her so she has clearer idea of how much exactly I'm eating and how much creon I'm taking with each food to see if it's enough or too much. And the lovely diary of what my poo is doing, she wasn't keen on the idea of me sending her poo selfies. So that I will just have to describe! Which she then mention there's actually a poo chart which they compare to chocolate bars!! 
Normal one 
Alternative one! 
Sorry I'm talking a lot of shit now hAha anyways so that's my homework until Monday, don't I live a glamourous life!

Another annoying thing, my scars are generally healing quite well but one of my drain scars has gone very raised and red and slightly itchy! Been told it's a keloid scar so not much I can do, surgery could help but would have to discuss with Drs and as I'm only 2 months I doubt they will touch it yet. 

It's only one of them which I'm lucky with considering where else they have cut me open! 
I'm still doing my bio oil at least once a day sometimes two or three!

One more thing I wanted to mention, which is important for me to write down about... I've started to write up a draft letter to my donors family! 
This is something I have always felt very strongly about! I feel they have given me such a huge part of their loved one and my donor was an amazing woman to have said yes and agreed to organ donation, and her family giving the last say! Such a tough decision at such a tragic time in their lives! 
Most people take months some even years to write to their donors family's. Some do it straight away! I wanted to do mine or at least start mine now so I don't forget all the life charging things these lungs have given me! Thankfully doing my blog helps me document it all too! As often late at night I  look back at old posts to see my thoughts and feelings at that time! ESP my very early entry's! 

But this has got to be one of the hardest letters I have ever had to write! I want to tell them all the amazing things I can do now and I want to tell them I'm so thankful to be here, but I also have to take into consideration that as great as it is for them to hear they have helped me and my donor has done the most heroic thing, they are also greifing and still very early days! Once they get this letter If they choose too, which I am 100% prepared for them not too, it is going to bring up a sad time in their lives!
 So I have to have a balance when writing this! I also have to be prepared for them not wanting to see my letter or if they do I hear nothing back. Again this is totally up to them and all I want is for the family to be happy and be proud of their loved one! And most importantly I want to do them proud too! My donor will live on in me, she is very close to my heart. She is the reason I wake up every morning, take a deep breath in and am thankful to still be here and to have more time with my husband and family! 
So this is to be continued, but the process has started from my end! 

Anyways sorry for such a long blog but this is prob one of the most important parts to my blog, they say save the best till last! 

My gorgeous Ashley Moore finally got her lungs! Been so hard to keep to myself in glad I can talk about it now!! 
I've been so worried, and although I had absolute faith she would get them, there was always that niggling feeling that it wouldn't come in time, and I didn't want her to be one of those that didn't get the chance like so many people sadly don't!!  #hopeformoore has made a change and been a massive global campaign now, although started and aimed for Ashley, it signifies all those desperately waiting for that second chance too! And there simply isn't enough people donating to save everyone who is waiting for that gift! 

But Ashley's story will change this, I really hope! She has had a massive support from alot of celebrity's via Twitter! And just because she has had her transplant, I'm sure Ashley will not want this to stop #sayidonate #hopeformoore needs to carry on!! 

This is a photo with Ashley's lovely family and friends! I spent a lot of time with Ashley's mum Diana over the past few weeks and she is such an amazing woman along with her lovely dad bob and her wonderful husband Alastair! And I can't forget the woman who got us in contact and who continues to push the campaign the lovely Pamela!! 

And not forgetting Ashley joining in on Halloween with her eye drops 
I cannot wait for Ashley to be up on her feet and running out of that place! And when I can give her a big hug! She's incredible! And everyone should inspire to be like this woman! She could so have easily given up! But she didn't and that is one of the bravest things to ever have to deal with!!

That's all from me, my life big catch up!!
Lots of love!! 
Sprog xxx

Tuesday, 20 October 2015

Harefield - A 2 month special! Ha

Today I'm 2 months transplanted!  Had a fun weekend at lees friends engagement party!! First proper night out dressed up, HEELS on and a lot of alcohol! Didn't last long on my feet though, my feet were massively swollen when I got home, who cares I had a good night and I managed to walk in heels! 4 weeks ago I could barely walk in gripper socks haha 

So today!!!....
After one of those unexpected days it has me in deep thought tonight! 

Since last week I have started to notice more swelling in my neck.
For anyone reading who doesn't know my story this summer and how I ended up getting so unwell before my transplant it started with a narrowing superior vena cava vein, the main one to my heart! Had a stent fitted, that opened it too much and stent fell into heart, stent got stuck in heart, caused more problems was ventilated in icu for 3 days bla bla bla got more unwell a few false alarms then got my transplant! But this never solved my narrowing of the vein! But since having better lungs and not coughing constantly and struggling for oxygen, I suppose all this helped and took the pressure off!
So I don't really cough anymore, I mainly do it to clear my annoying throat so I don't sound like I'm on helium all the time!

So no coughing means haven't noticed swelling until last week, when I lent over to put bath on and befor going out tying my shoe laces, all the pressure goes to my head! 

This weekend it got worse ESP Sunday night. I never lay flat, I always have at least two pillows, but even that wasn't helping the swelling in my neck! And it was ESP worse laying on my left side! I I tried so hard to sleep upright but Naturally in my sleep I slide down and I spent most of the night being woken up by a banging headache! The pressure was unbearable, paracetamol wasn't touching it! 
I emails the hospital first thing and they were great, added me onto clinic and sent me for bloods, had two cannulas inserted into each arm so they could do a ct scan with the dye into both sides of my body! 
This the machine they used, and I could see my lungs and veins on the screen 

I also had an ultrasound on my neck on both sides to check those veins.
Looking extra special here!! Lol 

After I had my bloods done in the morning, I was told to sit away from everyone in clinic and was given a little snack box! Haha my white blood count was very low, more at risk of infections, so everyone is a walking bug to me at the moment! 
I got to see beautiful Simona my consultant, she told me I have to stop my septrim, valagancious and mmf until my blood count comes back up! Which I was happy about of course 3 less drugs to worry about for a few days aye! 

Going back Wednesday for more bloods and tac levels and then clinic again Monday to see Simona and Aron my surgeon, they will have all the reports back from the tests! By the sounds of it I don't think it's anything to worry about too much and it's not completely blocked! They want to check blood pressure and move me in different positions to check on Monday. 

I feel much calmer this evening about it all knowing I've had all my checks and avoided staying in Harefield! I have to stay in at home this week until the white blood count comes back up! 

So I'm In isolation, no contact with people and busy area as I'm more at risk of infection and bugs from you humans! Lol and have to check my temperature twice a day, if it goes above 37.5 I have to be admitted into Harefield straight away! 
On a brighter note my Lungs sounded good and we seem to be bonding well ;) 

So that's my stuff. But someone I can't stop thinking about is my friend Ashley! 

She has been I the Brompton for months now, away from her husband Alastair and beautiful son Emerson! 

She was a massive support to me and we talk regularly but now she has been put on echmo, thankfully they transferred her to Harefield but is seriously ill in icu waiting desperately for lungs now!! 

I have a lot of friends waiting for transplant but when it becomes this serious you know the wait is unbearable, and things could end so badly if that call doesn't come in time! 
I hope so so much that I see an update any second/minute/hour/day that she has gone down to threate for her shiney new healthy lungs! I know it will happen she is in the best place, I just hope so badly that her body can stay strong in time for that perfect match!

You don't realise just how lucky you really are until your on the other side and see people like Ashley so desperate!! We need more donors and people willing to sign up and for families to know our wishes so more lives like mine and Ashley can be saved! And many more of my cf and non cf friends! Life is so precious and Ashley has a beautiful son and devoted husband! She needs to see little Emerson grow up, not be left without a mummy before he can even talk and walk!! 
So if your reading this and your still unsure about organ donation I hope this helps change your mind! Just imagine if you were in Ashley or Ashley's husband situation, or even baby Emerson! Would you want to grow up without your mum!?
Sign up today it takes less than 5 minutes! 

So lastly this week i can't wait for channel 5 to air a program called the gift of life! It's all about people waiting for transplants, their stories and journeys and also the donors family! On at 10pm Wednesday channel 5! Record or watch it, ESP next weeks Espisode where it shows the story of a friend of mine holly who got her double lung transplant back in February this year and she's doing amazingly well! 

Sunday, 11 October 2015

7 weeks post tx In the Lake District

New lungs visit the lakes! 

So this weekend has been the best, I spent the weekend in the Lake District! 

I have an amazing family who spent most of the time down south at Harefield whilst I was there, even when I couldn't handle visitors and physically and emotionally wasn't up to seeing anyone, they were still in the background! They dropped there lives to be around! 

I was so emotional buggered after my transplant I was in a bubble and didn't want to see anyone other than mum and lee! 

So it was only fair that instead of them traveling down AGAIN to see me since I've had my lungs, mum and I decided to venture up the beautiful north! 

I haven't spoken on the phone or seen them in person since I have these new puffers, so it was a massive shock and very emotional and exciting when they got to see me! 

Mum and I stopped off at knutsfords first and had a lovely pizza express with the Anglins! Then we surprised little Amelie from school as she didn't know we were coming up! She was mega excited and ran over and shouted across the playground "Georgina this is my teacher" and then ran over all excited then ran off to play on the climbing frames! 

I spent half the  journey up the m6 on the way to the Lake District with a 5 year old nattering away! I'm deaf so I didn't get half the conversations, but the smile, nod and saying ok and aww and really at certain times seem to work just fine! 
Then we played guess who, and then finished off with eye spy! Then she slept the rest of the way! 

You can always tell when your up north... You get the smell of cow shite! But weirdly it's comforting and feels like home! 

I was born in Lancaster as mum was staying up In the lakes when I decided to pop out! So i spent the first few months of my life up there and a lot of my childhood! So I always feel like the lakes has a small part of home in my heart! And I always feel so free and safe here! 

We decided not to tell my uncle we were coming up. We got to the house before they were coming home from a holiday in Spain. It was dark so we decided to turn all the lights off and hide in the hall way. My auntie knew and she opened the door and we came out shouting surprise!!! Was such a lovely moment! 

We spent the evening drinking lots of wine, Chinese and being told stories of Harefield! 
Was the weirdest feeling hearing stuff, I learnt so much more about the whole experience I had no idea about! 
I still don't feel connected to the stories! 
 By the end before I got the go ahead for my lungs, I was so focused on getting thru each day/ hour, each breath, every time a surgeon or consultant would come in, I had this energy that just came out of know where! I had to, I had to prove to them I could do this and hope they wouldn't write me off! 
I didn't want to be too unwell that they wouldn't transplant me! I had everything going against me! But I had the determination! There's no way I was giving up for shit!! 

But hearing the stories of what was going on around me that I was unaware of. Conversations that were being had. Thoughts people were having! I was so unaware of it all! 
I knew I was bad but hearing it back just feels like they are talking about someone else! 

Anyway back to my lovely weekend! 
So I esp brought some kiddies north face hiking boots for this weekend as I was determined to make the most of the beautiful place and get these new lungs so Cumbrian Clean air!! And also get these bloody legs into gear! 
And I did! 

My head still panics and thinks I can't do these things but I so can! I keep forgetting to breathe properly, I'm getting better and learning to take deep breaths when I'm walking! I went up some steep hills at the start of the weekend, and wow did I feel it! My lungs were getting out of breath, but I've been told this is good cause gets them working! But it's so weird because if I stop to recovery it takes like less than a minute and I'm brand new again! 
Now THAT would never happen before!! 
We also found the cutest little swing on route! 

I walked so far, right into Windermere and rewarded myself with cheesy nachos and a pina colada and 2 bellinis! 

We also saw a few people we knew and I stole their gorgeous doggy! 

Couldn't drink before I had my transplant, it would get me out of breath and I would struggle to breathe just after a few slips. I would either have to drink and get wasted or not drink at all! 
So now I can drink, and drink...and drink! And guess what....not in the slightest bit out of breath! 
I can't tell you how great that feeling is!! 
Like I said many times previously, it's the small things!!

So I've taken full advantage and drunk a lot! Didn't make me feel drunk though! 
Maybe I'm just hardcore now! And the Irish Somerville gene is coming out In me!! 
Or maybe my donor could handle her drink ;) 

Before I traveled up there we stopped at Harefield to have my bloods done for tac levels and found out that they are still 5 something, same as Monday even though I'd increased from 2mg twice a day to 3mg twice a day. But I knew I'd need to play about a bit as I was on verconazole before which stopped on Saturday and that increases your tac levels. Anyway so now I am on 5mg in the morning and 4mg at night and back to Harefield just for bloods on Monday morning! 

That evening Sally, James, Sebby and dom joined us and was very emotionally seeing Sally and them all, not seen them since pre tx that I was aware of! 

So Saturday afternoon I tackled the well know hill in Windermere called Orrest Head! Hill is an understatement in my opinion so I'm going to call it a mountain! It was so steep!! It's at the back of my auntie and uncles house and the back way up is not forgiving! So steep, I don't think I've ever used leg muscles like it before and my ankles were in bits and I was exhausted but there was no way I wasn't doing it! We took some breaks up which was perfect selfie moments of course!! We had lots of fun! 
Warning lots of photos haha 

A little bench perfect for a rest! Haha 

And another bench to moan about my ankles!! Hahaha 

As I made the last bit of the trek some of my family had gone on ahead and just myself nics and uncle preps (paul) were together and everyone clapped as I got to the top!! 

Very embarrassing ESP when behind everyone was my lovely CF friend Blaire who was also in Windermere the same weekend, sat there with her oxygen on! More of an achievement she made it up there, I would never have done hat pre transplant! 

Was amazing to finally meet Blaire, we have been Facebook friends for a while now! 
We shouldn't really meet because of cross infections but we kept our distance and on top of a hill/mountain with lots of fresh clean air was the best place to meet!! 

So we celebrated with some bubbles and pictures true jewsburys style! 

I love this photo of mum and I 

Then we went back down and chilled for the rest of the afternoon evening with some lovely food and strictly come dancing! Haha my auntie Cathy has got me into it now! Haha 

I've also been terrorised  this weekend! My voice is getting stronger and apparently I sound like Stacey Solomon at the moment! OH MY GOD!! Haha 

So today is home day! And my uncles birthday! We did pressys and cake and lite the candles on the cake 3 times! Once for my uncle, once for Amelie and then I was made to blow out the 3rd time! 18 candles and I done 17 at once haha there's always one aye!  
This is little sebby, he's 1 in Nov and this is the first picture of us without me having oxygen on! And I look a bit healthier! :)

We then went for a walk down to the beautiful lake, obviously took more pics! 

Such beautiful views and scenery 

And then went for lunch! 
Was so lovely but typically my tummy decided after starter it was going to play up! I was so gutted I ordered a lovely WELL cooked steak as not allowed raw medium anymore :( but I got the worse cramps and bloated out so much I couldn't handle it! And it was so yummy too. 
It got so bad I felt sick and could barely talk! 

We decide a way to leave early and set off back down south as we had a long journey ahead of us! 

Well we left at 2 and I'm writing this blog now at 7-8ish and we haven't even got to the m6 toll yet the traffic has been horrendous!! But the weekend was worth it! 

So thanks my gorgeous weekend! I have left north with more muscles and hopefully stronger lungs for the week ahead!!