So that's it, I have conquered my first year, I've sailed through with no problems, I know this is cheesy but wow do I feel proud of myself!!
I can't quite believe it's been a year already, at times it feels like only yesterday I was put back on the transplant list and started the agonising wait, and that morning of getting the 4th call for lungs and knowing it was a go ahead, but then at the same time it's feels like a lifetime ago, or like another person.
Life has changed so dramatically sometimes I don't even know who I am anymore, ESP with less frequent hospital visits and nothing to struggle with.
I've spent my whole life just knowing hospitals and being unwell or coughing all the time and even when I was doing well I still had cf so lungs were never perfect and quickly reminded me that when I would push myself or try be "normal"
But now I pretty much am what I can only imagine is normal and it's mental!! And got to be honest but fucking scary sometimes!!
I'm so positive and maybe too positive for my own liking sometimes, negativity rarely enters my head, but when it does the worrys hit me like a ton of bricks, and leading up to my year I started to thing maybe things have gone too well, what's going to happen now! But I brush myself off and chuck that neg thoughts away! "Just shut up George and enjoy every moment!!"
It's all still very unreal, ESP like I said in my previous post, seeing stuff "on this day a year ago" on Facebook, things I missed, messages from people, it's just crazy! I've come so far from such little life left in me!
But also this past year it's been lovely to see my family, my sisters grow and be part of their lives(as much as they will let me)
Seeing my mum go from strength to strength and get her confidence back and working again, we have an incredible. Relationship and she's put her life on hold for far too long for me and everyone else, this is prob the first time since I was born she's been able to have me time for herself! And that in itself makes me so happy!!
She's an amazing mum and person and everyone who knows her loves her dearly!
Lee has got a proper wife for once and not a little vegetable stuck in a wheelchair or on oxygen anymore just a little fatter version of the 18 year old girl he met!
Life is amazing and the things I write to describe it don't even come close to how good it really is!!
On my actually anniversary the 19th myself, mum, Cathy, Paul, Nicola, baby vivi and holly met at Harefield hospital. I have in a card to send off to my donor family. And then let a balloon of for my amazing beautiful donor!
So enough of the soppy shit!!
How I celebrated! Well Obvs I had a party because let's face it, it's not every day you have a transplant and get to the first year so smoothly!
So yeah we partied! Maybe a little too much...
And yeah so this is the result...
So that's just a few snippets but I had the best night and got so emotional at the end when they played my song "fight song" I cried my eyes out and I hardly ever cry!
Also This photo below is amazing, we got all of the transplant lot together who were able to make it. Thanks to all our amazing donors we could all share this special moment together!
So we have Ashley- double lungs
Emily- double lungs
Sarah-kev the kidney
Andrew- double lung, heart and kidney
Holly- double lung
Paula- double lung
Veronica- double lung
Sharon- double lung
12 patients, 13 donors, if this isn't a good enough reason to sign up for organ donation I don't know what is!
So all in all it was such A good anniversary and appreciate everyone who made it special for me, ESP lee for sorting all of the party stuff out and let me have whatever I wanted! Such a babe haha
A few things in the next few weeks and countdown to my first holiday in 3 years!!! Cannot bloody wait!!