Saturday, 27 August 2016

I did it mofos, 1 year post transplant!

So that's it, I have conquered my first year, I've sailed through with no problems, I know this is cheesy but wow do I feel proud of myself!! 

I can't quite believe it's been a year already, at times it feels like only yesterday I was put back on the transplant list and started the agonising wait, and that morning of getting the 4th call for lungs and knowing it was a go ahead, but then at the same time it's feels like a lifetime ago, or like another person. 

Life has changed so dramatically sometimes I don't even know who I am anymore, ESP with less frequent hospital visits and nothing to struggle with. 

I've spent my whole life just knowing hospitals and being unwell or coughing all the time and even when I was doing well I still had cf so lungs were never perfect and quickly reminded me that when I would push myself or try be "normal" 

But now I pretty much am what I can only imagine is normal and it's mental!! And got to be honest but fucking scary sometimes!! 

I'm so positive and maybe too positive for my own liking sometimes, negativity rarely enters my head, but when it does the worrys hit me like a ton of bricks, and leading up to my year I started to thing maybe things have gone too well, what's going to happen now! But I brush myself off and chuck that neg thoughts away! "Just shut up George and enjoy every moment!!" 

It's all still very unreal, ESP like I said in my previous post, seeing stuff "on this day a year ago" on Facebook, things I missed, messages from people, it's just crazy! I've come so far from such little life left in me! 

But also this past year it's been lovely to see my family, my sisters grow and be part of their lives(as much as they will let me) 
Seeing my mum go from strength to strength and get her confidence back and working again, we have an incredible. Relationship and she's put her life on hold for far too long for me and everyone else, this is prob the first time since I was born she's been able to have me time for herself! And that in itself makes me so happy!! 
She's an amazing mum and person and everyone who knows her loves her dearly! 
Lee has got a proper wife for once and not a little vegetable stuck in a wheelchair or on oxygen anymore just a little fatter version of the 18 year old girl he met! 

Life is amazing and the things I write to describe it don't even come close to how good it really is!! 

On my actually anniversary the 19th myself, mum, Cathy, Paul, Nicola, baby vivi and holly met at Harefield hospital. I have in a card to send off to my donor family. And then let a balloon of for my amazing beautiful donor! 


We then went for a lovely lunch at the orchard in Harefield and Pamela and graham came to join in! And can't forget the lovely cake my mum made me even though she's never made a cake before haha 


So enough of the soppy shit!! 

How I celebrated! Well Obvs I had a party because let's face it, it's not every day you have a transplant and get to the first year so smoothly! 

So yeah we partied! Maybe a little too much...
I got a little hall with a bar at Woking football club, I had a photobooth, I made jelly shots! And lots of nibbles! 

And yeah so this is the result...



LLGL LOT
My favs minus Billee 

So that's just a few snippets but I had the best night and got so emotional at the end when they played my song "fight song" I cried my eyes out and I hardly ever cry! 

Also This photo below is amazing, we got all of the transplant lot together who were able to make it. Thanks to all our amazing donors we could all share this special moment together! 

The newbie is 3 months and the longest is 31 years!! 

So we have Ashley- double lungs
Emily- double lungs 
Sarah-kev the kidney
Andrew- double lung, heart and kidney
Kristina-double lung
Holly- double lung
Paula- double lung 
Carla- heart 
Veronica- double lung 
Vanessa-double lung
Sharon- double lung

12 patients, 13 donors, if this isn't a good enough reason to sign up for organ donation I don't know what is!

So all in all it was such A good anniversary and appreciate everyone who made it special for me, ESP lee for sorting all of the party stuff out and let me have whatever I wanted! Such a babe haha 

A few things in the next few weeks and countdown to my first holiday in 3 years!!!  Cannot bloody wait!! 

Mucho loveo  


3 comments:

  1. I applaud your exercise plans, and jeez, I need to join you too (post holiday prosecco tum in my case!). I'll try and do the same. But seriously.... Fat? You are too tiny and gorgeous for words! But like you, my son also gets that cheeky little 'pred face', I think it's kinda cute, but can understand why you might not! I think you look lovely, and your positivity is the thing that shines through in your blog, like no other blog I have ever read before. Thank you for that. You brighten my day! Much love x

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  2. I've been following your blog since you got your transplant and a few things I have found disrespectful and very blarzay for your donor like moaning about having to go to Harefield for blood tests because it is early.
    But being in a wheelchair and married myself your casual comment here disgusted me. Considering what you have been through you don't come across thoughtful of everybody else still dealing with CF. I myself have CF and am married and for anyone else reading this is awful.

    Lee has got a proper wife for once and not a little vegetable stuck in a wheelchair or on oxygen anymore just a little fatter version of the 18 year old girl he met!

    You was not a vegetable in a wheelchair you was someone very unwell in a wheelchair. There are people still in that position and mothers and fathers reading this who's children are at that stage. Have some respect.

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  3. Hi to be honest your entitled to your own a opinion but this is my blog and how I feel, if you find it disrespectful simply don't read it! And I'm sorry your in the situation you are in but when I was I tried to focus on the good and positive and have a bit of humour with it instead of feeling sorry for myself and uptight! There's plenty of other depressing blogs you can read that will be more suited for you! Many thanks

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